Meet our Grand Marshal for the 2019 Holiday Electric Light Parade. Meadow Moyes is a 9 year girl who is easy to please, very humble, LOVES her family and friends and she has the biggest heart! We want to thank Make-A-Wish for providing your Grand Marshal every year!! Please read more of Meadow's story below.
Meadow was diagnosed with Cystic fibrosis when she was only 5 weeks old. Even though our new baby girl seemed perfect to us, we knew something was different about her, but we were not quite sure, we were back and forth to the pediatrician several times during those weeks since she was not gaining weight but losing it.
Finally, after five long weeks of uncertainty, we received a phone call to tell us that we needed to be at Primary Children’s Hospital for an appointment that same day. They told us that they believed that Meadow has Cystic Fibrosis.
In a daze of confusion and concern, we left Meadow’s 2 brothers with family, and began the long trip to the hospital. During the appointment we were overwhelmed with information. There was so much to learn including; how this happens, and what it means for our daughter, for our lives. We were told she had a life expectancy of only 37 years old.
After several hours in this whirlwind appointment of horrifying news and devastating information, we were sent home with our "welcome to CF" starter kit containing medications and other items we'd be needing, to start this new chapter of our lives.
Although Meadow’s days consist of various daily medications and breathing treatments (with the quarterly doctors’ visits), Meadow is quite the well-adjusted, active little girl. She loves riding her bike or scooter around the neighborhood, jumping on the trampoline, creating art of any kind (whether it be from sidewalk chalk, sketching, coloring, painting or crafts), to playing with her friends. To look at Meadow, you would not know that she has this genetic disease. She is a normal happy, crazy kid.
Each spring we attend the Great Strides walk a thon to participate in and raise money for the Cystic Fibrosis Foundation. We have family travel here from Washington, Colorado and California. We use this time as a great excuse to have a family reunion. Meadow LOVES it!
Because of her life long struggle with Cystic Fibrosis, she was granted a wish from the Make A Wish foundation. She has finally declared that wish and will be going to Disney World in 2020. We as a family and all the people she touches with her bright spirit, simply cannot wait to see her face light up and enjoy this magical experience.
